Day 18 of #MyEDSChallenge … words to parents


Listen to your kids and fight for them at the doctor. If they are clumsy and double jointed, look more closely at what might be going on. 

Try to find a way to help your kiddo enjoy PT. If they’re sporty that might not be hard, but I honestly don’t know what would have motivated me to do that as a child or teenager. 

The more they know as they grow up, the better they’ll be able to advocate for themselves. The better they are at listening to their body and setting boundaries, the better they’ll be able to advocate for themselves!

@ehlers.danlos

#MyEDSChallenge

#hEDS

#EDS

#invisibleillness

#invisibledisability

#edsawareness

#ehlersdanlossyndrome

#ehlersdanlos

#hypermobilityspectrumdisorders



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