Finding a local support group has made such a huge impact on my life! It’s hard to overstate how helpful that’s been, both in feeling validated about my experiences with my body and with healthcare, and in terms of finding local sources of help. It’s great to know which doctors are EDS-aware, and which PTs and OTs are better able to help. Actually, it’s beyond great; it’s absolutely critical to getting good care, especially for anything surgical.

EDS is a real bear of a condition, and knowing I’m not alone has been a tremendous support. I’m hoping in the future to be more involved in some national and international support through the Ehlers Danlos Society. 

@ehlers.danlos

#hEDS

#EDS

#invisibleillness

#invisibledisability

#edsawareness

#ehlersdanlossyndrome

#ehlersdanlos

#hypermobilityspectrumdisorders